Showing posts with label rainbow baby. Show all posts
Showing posts with label rainbow baby. Show all posts

Friday, August 24, 2018

National Rainbow Baby Day

Two days ago was National Rainbow Baby Day. ðŸŒˆ ❤️ 💛 💚 💙 💜 💕 


A "rainbow baby" is a term commonly used in the pregnancy/infant loss community, referring to a baby born after the loss of a baby.

People like to imagine that everyone gets their rainbow baby. It's assumed that if you know the heartache of pregnancy or infant loss that you automatically get a license to bring home a healthy little one, almost like it's a guarantee to know that joy after being acquainted with such pain.

The reality is that not everyone does get a rainbow baby, some never and some not for a very long time. I'm not trying to be a Debbie-downer here, but please hear me out.

It has been 8 1/2 years since my daughter Lily passed away unexpectedly and for no known reason at full-term. I've seen my fair share of rainbow babies.... in fact, some of those who lost their baby around the same time as me have gone on to have 4 children since that time! It's like a fresh wave of loss parents comes along every year or so and then inevitably they have a healthy child soon after. I've seen this time and time again and it doesn't get any less painful with each pregnancy announcement and birth.

It's not that I am not overjoyed for them. It's that I'm sad for those of us who feel left behind. And I'm sad because I wonder if this is what I'm destined for, especially with the way so many parents of rainbow babies talk about them.

There is a community within the babyloss community of women who don't have a rainbow baby (for many different reasons). We're known as "still mothers," because we are still mothers even when our motherhood is invisible to the world. We have a website and a support group with other others who "get it." We are mothers who understand that not everyone is guaranteed a rainbow after the storm, but that doesn't mean we lack hope. Many of us prefer not to use the term "rainbow baby" because the babies that we lost were not a storm. Our babies brought light and love and COLOR to our worlds and their death doesn't negate that.

Parents of rainbow babies talk about their child bringing them out of the pit of the sorrow that comes when one loses their child.

A particular friend I know lost her son early one year, got pregnant with her daughter later in that same year, then welcomed her into the world at the end of the year. She wrote on her blog about how the day of her daughter's birth overwhelmed her with gladness. She said, "To this day I know she is the only reason I ever recovered. She's the only reason I am not still deep in sadness."

A few years ago, I met a mother online whose daughter was due just days before Lily in March 2010. This little girl shares both Lily Katherine's first and middle names, just with a different spelling for both names. She was stillborn in late February of that year. We connected over our daughter's similar dates and names. Then she told me she had a healthy daughter a year later. She told me if she lets go of her focus on her living daughter, her heart becomes much heavier about her daughter who is no longer living.

Seeing and hearing these things is difficult for the invisible mother club. When I read these things, it stings because I wonder, will I recover? In many ways, I think that having a baby in my arms would help heal me in deep and immeasurable ways while on Earth, ways that only ever having another child can heal. Does God not want me to be healed in the way He has allowed others to be? Am I just resigned to the fact that I may always be haunted by silence, never to hear my own baby's sweet cry? Is this what my motherhood is going to look like for the rest of my life?

We should be careful not to pain the picture that life gets better if and when you have a rainbow, so if you can't or don't, you're destined for a life of misery and isolation.

Maybe us invisible mothers should redefine how we view rainbows. Maybe our rainbow is how we mother our baby's legacy. Maybe the rainbow that's been born after our loss is how we honor them, how we write about them, how we go to remembrance walks and candlelight ceremonies, release butterflies, continue with traditions on their birthdays, plant gardens, make hospital comfort boxes, etc. Maybe the light and color that comes is how we bring light and color to other families whose worlds have been darkened by loss.

Not everyone gets their rainbow baby, but maybe we can still have our rainbows. Even if we don't get what most people think will heal us and make us whole, Jesus is still enough. He is my rainbow, my hope in life and for eternal life. Maybe that's what my rainbow story is supposed to be.

I'm not trying to make anyone with a rainbow baby feel bad or feel like they shouldn't share. I personally *do* like the term and you better believe if my time ever comes, especially after waiting so many years, that I will be thrilled and all about some rainbows!

I just hope in my sharing others will realize rainbow babies aren't always expected or guaranteed and how it can be painful, confusing, and isolating for the invisible mother wrestling with these things. Let's weep with those who weep and rejoice with those who rejoice and not forget to have empathy with where others are.

If you are also a bereaved mother without a living child, check out the website Still Mothers (there is also a Facebook page and an online support group).

I appreciate this article about The Unique Grief of Mothers without Living Children. It is so comforting and validating. I thought I'd share it here for anyone else in similar shoes and also to give a glimpse into what it's like.

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On another note regarding rainbow babies, I saw this touching video on Facebook (click link to view) that made me tear up. It's of a mother taking her rainbow baby home from the hospital. I've been praying and hoping for even the opportunity to have a rainbow for 8 1/2 years and don't know if the day will ever come, which hurts more than I could ever express. But I imagine I'll feel a lot like this beautiful mother if my day does comes. Somehow experiencing great loss makes love that much deeper. And I can only imagine how the longer the wait, the sweeter it'll be.

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Wednesday, August 22, 2018

Believing for a Miracle with a Broken Heart

My roomie put this inspirational quote up in our living room.


I've been thinking a lot about the truth in these words and how freeing and beautiful they are.

Don't we get it in our minds that we can *either* have hope *or* a broken heart? That the two are mutually exclusive?

When really the two can coexist side-by-side. The broken heart makes the hope for a miracle that much sweeter and when that miracle is fulfilled, that much more a thing of awe.

You can be broken-hearted over the baby you lost while at the same time hoping for the miracle of a rainbow baby.

You can be broken-hearted over being single and life not going the way you thought or dreamed it would while at the same time believing that God can change your circumstances and bring you a spouse.

It’s not either/or.

And like a seesaw going back and forth, sometimes your heart will feel more of the weight of hope or the weight of being broken-hearted. But that doesn’t mean the other doesn’t still exist and won’t again reign.

There are lessons to be learned in sorrow and in hope, and sometimes the lessons are found when both occupy the same soul simultaneously.

You, yes you, the one with the broken heart... you can believe things will change and your miracle will come, fully trusting God holds and ordains your life, while still feeling the ache in your heart. You don’t have to choose. 
❤️

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Thursday, June 29, 2017

On Pregnancy Announcements and Cherishing Life

If I am ever blessed with having another life to grow within me, I will want to share the joyful news early in pregnancy.

There are many people who wait until after the first trimester at least to make a pregnancy announcement because of the possibility of an early miscarriage, which is understandable. However, my thinking on this differs from these people. Let me explain...

I know that the odds of losing a baby decreases the further into the pregnancy one reaches, however when you have lost a baby literally AT their due date, you come to understand that there is no "safe zone."

Not only that, but even if I were to lose another baby, I'd want the support of others if it did happen. I wouldn't want to face the pain and loss alone.

Also, I believe every life deserves to be acknowledged and celebrated, no matter how short or long they are.

I hear of people who wait to announce they are having a baby until after the baby is born, and some wait to learn the gender until birth. I understand this can be an exciting surprise, but the way I see it, which has obviously been shaped by my full-term loss, I want others to know about and love my baby for as long as I have them here. I don't want this to seem like a morbid way of thinking, it's simply reality. I want to know my baby by his/her gender and name. I want to bond with my child as much as I possibly can because each day is a gift and tomorrow is not guaranteed. Lily taught me that. Lily taught me how to treasure her future siblings in a fuller way.

I want to make memories during my pregnancy, and gather keepsakes that document that sacred time in my life... getting a belly cast, professional maternity photos, etc. Not that I didn't make memories with Lily, but if I knew then that it'd be the only time I'd have with her, I would have been intentional about doing much more.

I'm thankful for the 40 weeks and 2 days I did have with her and that I bonded with my baby girl named Lily Katherine for the time I could. My heart truly connected with her for who she was, as a unique soul created by God, not for anything she'd ever do or accomplish, which doesn't make someone who they are anyways. ðŸ’•


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Sunday, May 21, 2017

Pieces of My Motherhood


Real heartbeat
Unique DNA
My Luke Shiloh

A new name
He gave me
"Mother"

Only 6 weeks
Too soon with Jesus
Missed all my life

Another heartbeat
Unique DNA
My Lily Katherine

Memories held dear
Pregnancy to birth
My first-born

40 glorious weeks
Sacred and sweet
Beautiful girl missed

A not-yet heartbeat
Unique DNA
My hoped-for baby

I pray more than weeks
But a lifetime to raise
His will be done

All my babies -
First child of my heart,
First-born,
Future first-to-raise -
Irreplaceable pieces of my motherhood

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Thursday, February 2, 2017

On Rainbows

This is something I shared for the first time last February. I've been reminded of it lately as I wrestle with similar thoughts and feelings, another year into the journey.

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Many people who have lost babies that I've met in the past 7 years have gone on to have a "rainbow baby," as they are called (many have multiple rainbow babies). A rainbow baby is a child who is born after the storm of losing a child. These people talk about their child bringing them out of the pit of the sorrow that comes when one loses their child.

A particular friend I know lost her son early one year, got pregnant with her daughter later in that same year, then welcomed her into the world at the end of the year. She wrote on her blog about how the day of her daughter's birth overwhelmed her with gladness. She said, "To this day I know she is the only reason I ever recovered. She's the only reason I am not still deep in sadness."

A couple years ago, I "met" a mother online whose daughter was due just days before Lily in March 2010. This little girl shares both Lily Katherine's first and middle names, just with a different spelling for both names. She was stillborn in late February of that year, meaning her 7th birthday is soon. We connected over our daughter's similar dates and names. Then she told me she had a healthy daughter a year later. She told me if she lets go of her focus on her living daughter, her heart becomes much heavier about her daughter who is no longer living. On her eldest girl's birthday last year, she took her little sister to her stone.

A good friend of mine who lost her daughter in 2010 as well had a healthy baby daughter a little over a year ago, with a couple boys born in between those years. When my friends have their rainbows, I am truly delighted for them, but it does sting to see her hold her littlest girl in her arms. I want a little girl in mine.

Another friend who lost her baby girl last year already mentioned that she's hoping to have another healthy baby this year to help brighten the mood. 

Seeing and hearing these things is difficult for me, because here I am, 7 years later, and still no living baby. In some ways, I am still deep in sadness. When I read these things, it stings because I wonder, will I recover? In many ways, I think that having a baby in my arms would help heal me in deep and immeasurable ways while on Earth, ways that only ever having another child can heal. Does God not want me to be healed in the way He has allowed others to be? Am I just resigned to the fact that I may always be haunted by silence, never to hear my own baby's sweet cry? Is this what my motherhood is going to look like for the rest of my life?



The way it feels is that I am running this marathon on a track and it seems to be a never-ending race. There are all these other runners, many having started the race after me, who keep passing me, and then lapping me. They are leaving me in the dust. And for some reason, I can't keep up. I picture myself in quick sand, unable to move, despite how much I want to. Each lap represents a new relationship, an engagement, a wedding, a baby, another baby, and then another. And I am still on that same track, still running, still waiting for the rewards of each lap. 

Where exactly do I "fit"? I don't feel completely understood at infant loss support groups because I am not in the place to have another child, like most of the others there are. It's not their fault, and obviously they don't want it to hurt me, but that's just the way it is.

I have many different experiences, making it impossible to find someone who can relate to them all. This has driven me more into the arms of Jesus, as I recognize nobody can or ever will be able to understand completely. But I know He does. And maybe I'm meant to be in the place where I feel completely isolated and misunderstood, so that I will turn to the only One who validates, understands, and loves me through it all.

Not everyone gets their "rainbow." I pray that the Lord reveals in and through my life that even if we don't get what most people think will heal us and make us whole, He is still enough. He is my rainbow, my hope in life and for eternal life. I am exactly where I'm supposed to be on the "track of life," referencing the marathon analogy.

If you are also a bereaved mother without a living child, check out the website Still Mothers (there is also a Facebook page and an online support group).

I appreciate this article about The Unique Grief of Mothers without Living Children. It is so comforting and validating. I thought I'd share it here for anyone else in similar shoes and also to give a glimpse into what it's like...

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Wednesday, February 24, 2016

On Rainbows

Many people who have lost babies that I've met in the past 6 years have gone on to have a "rainbow baby," as they are called (many have multiple rainbow babies). A rainbow baby is a child who is born after the storm of losing a child. These people talk about their child bringing them out of the pit of the sorrow that comes when one loses their child.

A particular friend I know lost her son early one year, got pregnant with her daughter later in that same year, then welcomed her into the world at the end of the year. She wrote on her blog about how the day of her daughter's birth overwhelmed her with gladness. She said, "To this day I know she is the only reason I ever recovered. She's the only reason I am not still deep in sadness."

About a year ago, I "met" a mother online whose daughter was due just days before Lily in March 2010. This little girl shares both Lily Katherine's first and middle names, just with a different spelling for both names. She was stillborn in late February of that year, meaning her 6th birthday just passed. We connected over our daughter's similar dates and names. Then she told me she had a healthy daughter a year later. She told me if she lets go of her focus on her living daughter, her heart becomes much heavier about her daughter who is no longer living. On her eldest girl's birthday this year, she took her little sister to her stone.

A good friend of mine who lost her daughter in 2010 as well recently had a healthy baby daughter, with a couple boys born in between those years. When my friends have their rainbows, I am truly delighted for them, but it does sting to see her hold her littlest girl in her arms. I want a little girl in mine.

Seeing and hearing these things is difficult for me, because here I am, 6 years later, and still no living baby. In some ways, I am still deep in sadness. When I read these things, it stings because I wonder, will I recover? In many ways, I think that having a baby in my arms would help heal me in deep and immeasurable ways while on Earth, ways that only ever having another child can heal. Does God not want me to be healed in the way He has allowed others to be? Am I just resigned to the fact that I may always be haunted by silence, never to hear my own baby's sweet cry? Is this what my motherhood is going to look like for the rest of my life?


The way it feels is that I am running this marathon on a track and it seems to be a never-ending race. There are all these other runners, many having started the race after me, who keep passing me, and then lapping me. They are leaving me in the dust. And for some reason, I can't keep up. I picture myself in quick sand, unable to move, despite how much I want to. Each lap represents a new relationship, an engagement, a wedding, a baby, another baby, and then another. And I am still on that same track, still running, still waiting for the rewards of each lap. 

Where exactly do I "fit"? I don't feel completely understood at infant loss support groups because I am not in the place to have another child, like most of the others there are. It's not their fault, and obviously they don't want it to hurt me, but that's just the way it is.

I have many different experiences, making it impossible to find someone who can relate to them all. This has driven me more into the arms of Jesus, as I recognize nobody can or ever will be able to understand completely. But I know He does. And maybe I'm meant to be in the place where I feel completely isolated and misunderstood, so that I will turn to the only One who validates, understands, and loves me through it all. Not everyone gets their "rainbow." I pray that the Lord reveals in and through my life that even if we don't get what most people think will heal us and make us whole, He is still enough. He is my rainbow, my hope in life and for eternal life. I am exactly where I'm supposed to be on the "track of life," referencing the marathon analogy.

If you are also a bereaved mother without a living child, check out the website Still Mothers (there is also a Facebook page and an online support group).

I appreciate this article about The Unique Grief of Mothers without Living Children.

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Tuesday, December 18, 2012

Update on Friend's Rainbow Baby

Thank you to everyone who has been praying for my friend Morgan, her husband Mike, and their precious rainbow baby. I want to give you an update on what's happened since I posted my prayer request.

Morgan and Mike welcomed a little BOY named Ethan Michael into the world this morning, December 18th, 2012, at 3:37am. He weighs 2lbs 5 oz and is 15 inches long. He is in the NICU and doing well. Right now he is on the bubble cpap, but he might have to go on the ventilator. They are waiting to see. His lungs are still premature, but having had the steroid shot does help.

Morgan got to have the kind of delivery she wanted and could see Ethan and hear him cry right after birth.


The little Christmas baby was born at 27 weeks, 4 days gestation and has a long journey ahead of him. He and his parents need continued prayers and support. Thank you for loving this family with me!


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Sunday, June 10, 2012

In my arms and heart

I met and held a baby girl named Emma Grace this week. She was born on February 16, so she's a little less than four months old. Her mom, my friend Wendy, handed her to me and right away my arms seemed to ache a little less. I can't find words to describe how wonderful it felt to hold a baby. Little Emma Grace grabbed onto my sleeves and it melted my heart. It just felt so right. This may sound weird to say this, but holding a baby with life within felt foreign to me. All I know is holding a baby with no life. Your telling me babies actually move around??

when Emma Grace was in her mama's belly :-)

Emma Grace outside her mama's belly, in my arms :-)

Yes it was hard to hold a baby, especially a girl...but it's more than that now. It's healing. Beautiful. Looking into Emma's blue eyes and having her smile back at me with those chubby delicious baby cheeks, I felt so much joy. I fell in love with this little sweet pea. Love at first sight. And it made me think, if I already love this lil' baby so much that isn't even my own, how much more will I love flesh of my flesh? Of course I love Lily more than I ever dreamed possible, but I still don't know what this type of connection between a mother and her child is like. What will that be like to have my own baby look back and smile up at her mama? Oh, it must be simply glorious.

I hope and pray that one day I get to experience it on this side of Heaven. I truly believe I will. God fulfills the desires of our hearts because He is the One that places them there. 

"Delight yourself in the Lord and He will give you the desires of your heart." ~Psalm 37:4

When you delight yourself in the Lord, your desires become His because you are truly seeking His heart and you only want for your life what He wants. Your desires become aligned with His. I have begged and pleaded that He would take this desire away if I am not meant to be a wife and mama. But, no, instead of going away, it grows stronger. Now, I pray that this dream would be harnessed and that the emotions involved would not rule my life. I pray that when the time comes for me to fulfill this calling, I will be ready. I am purposeful in making this a time spent in preparation, so I can and will be everything God intends me to be in those roles. That I would honor my future husband all the days of my life (Proverbs 31:10-12). And glorify the Lord each day and in each decision I make. 

If it's so that God is calling me to a life of singleness, I know He will sustain me and give me joy in that. If that's what He's calling me to, I want to be nowhere else. I know, trust, believe that He will make my path clear, in each moment I'm called to make a decision.

"Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him, and He will direct your paths." ~Proverbs 3:5-6

So much joy.

So much hope.

I'm praising the Lord today for the hope of holding another babe to call my own on this side of Heaven...and for the hope of one day soon meeting the two that wait for me there. The two I'll hold forever in my heart.

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Monday, May 28, 2012

A Letter to My Future Child

Dear, sweet baby,

At times, I already feel like I can smell your sweet baby smell. I can almost feel you in my arms, deeply drinking in those first few moments. The first moments our faces meet. Will they be full of tears? Silence? How can I already love you this much? Someone that is only a dream...a hope. Not a promise. Or a given. Someone that will be my rainbow after the storm.

Do you know I already dream of names for you? And think of how special it would be to have rainbows be your nursery theme? :-)

What will it be like when I see that little stick show positive and it fill me with only happiness?

When I first hold you, what will it be like? Will I love you the same as I love Lily? Somehow I know in my heart I will. Somehow I know that first moment will be just as this whole journey has been and will continue to be. Sorrow mixed with joy. Celebration and melancholy. Sorrow because I never got to know your big sister in that way. Joy because I have you! I sometimes worry if I will have enough love to give. But I know that's just a silly thought.

How will I answer when others ask that dreaded question, "Is this your first?" Will I say yes, because I don't want to have to explain everything? Or will I say no, there was a little girl who came before. Would I be in a place where I am comfortable enough to say no? I cannot imagine that ever being so. Yet, I know, no matter what my answer is, Lily will be the first child of my heart. Always. Though I never got to look in her eyes. Though everything past day one that I experience with you will be my first. Not my first baby, but my first time experiencing everything past the womb and hospital.

You will be a part of Lily. She will always be your big sister. I want so much for her to be a part of your life. Our lives. Forever. What will March 16th be like when you come? What will I tell you about your sister? How will we incorporate her into daily happenings? Will I have to teach you how to love her?...or will you simply know?

Will there always be that empty place that only she was meant to fill? Will there be that hole in your heart, because you weren't meant to be the eldest? I picture future family photos and realize those portraits will never be complete. There will always be a special someone missing from them. A piece of my heart left with this special someone. Yet, she is still here. I carry her with me. Will you carry her with you?

For now I will go on loving the dream of you. Though I can't see your face, though I don't know your name, whether you're a boy or girl, or anything else about you. I know that you are loved already. I know that you will heal my heart in so many ways. I will go on hoping that you aren't just a dream. And one day, you will look into my eyes, as I gaze back into yours...something I never got to do with your sister. And so many parts of my heart will sob and sing at the same time. Do you know how much I long for that moment?

I know He already knows your name. He knows the plans He has for your life. He knows it all. I don't know how long until we meet. How long until I am given the most beautiful gift of having a child grow within once again...yet I know when that day comes, it will be worth all the waiting. And all the tears. It will be a true taste of Heaven on earth. It will be glorious. 

I love you, my healing baby. My future. My gift from the Lord. My beautiful rainbow.

Until we meet,

Mama

The meaning of a "rainbow baby": 

The understanding that the beauty of a rainbow does not negate the ravages of the storm. When a rainbow appears, it doesn’t mean the storm never happened or that the family is not still dealing with its aftermath. What it means is that something beautiful and full of light has appeared in the midst of the darkness and clouds. Storm clouds may still hover but the rainbow provides a counterbalance of color and hope.

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