Showing posts with label stillbirth. Show all posts
Showing posts with label stillbirth. Show all posts

Monday, October 1, 2018

It's Not Just a "Cause"

Most everybody knows that October is Breast Cancer Awareness Month. Two of my aunts are survivors of breast cancer. There is pink everywhere, from people you see wearing t-shirts at the grocery store to NFL players sporting pink shoes on the field. There are several walks to support this cause and billions of dollars pored into research. Millions of people acknowledge it, which I think is a wonderful thing. You basically can't live in the United States and not hear about it constantly during the month of October.

But, not many people know that October is also Pregnancy and Infant Loss Awareness Month. It is far too often overshadowed. I would never want those other things to be forgotten about, I just want P.A.I.L. (pregnancy and infant loss) to be spoken about as well. I want commercials about it and money being pored into it by giant corporations. It is a worthwhile thing to research, understand, and talk about. 


You can get your own PAIL Awareness images to share with friends, family, on your blog or social media accounts from Luminous Light Studio by clicking here.

My daughter, Lily Katherine was stillborn 2 days past her due date. I had a completely normal, healthy pregnancy and she was a healthy baby. She had a full autopsy done and nobody could give me a reason medically for why it happened. Don't you think it's about time something was done about this? In the United States of America in the 21st century, thousands of babies should not be dying with no explanation. 



I know I talk quite a lot about Pregnancy and Infant Loss. You'll see pink and blue strewn throughout my social media pages, especially throughout the month of October. But you see, to me it is not just another "cause." There are thousands of causes out there, aren't there? Support this, support that. Many of these things are important. This is not a cause, but our children. It's not merely about raising awareness for the sake of people being aware. PAIL Awareness Month is about honoring our babies and speaking out about the dignity and value of their lives, despite how brief. I don't just share the awareness ribbon or take part in the Capture Your Grief Project to make pointless noise. I am as outspoken as I am for a few reasons...

One, I want those who have lost their baby to know they are not alone. I want them to be pointed to resources to help them heal. I want them to know it is healthy and okay if they want to share their stories. 

I also want others to understand how loss affects someone, irrevocably. I want others to get a glimpse into what it's like, so maybe they will learn how to offer support and understanding to those impacted by infant loss.

I want to share my beautiful Lily with the world, my sweet girl who lived a full life in my womb and will always live in my heart. My girl who will always be my baby. This is how I mother her, this is how I share her. It was a gift the Lord gave me when He opened up my heart to love her as much as I do. And because of how much I love her, I miss her with that same great measure. The grief, in turn, is also a gift, for even that points to the sanctity of her life and each life, no matter how brief. I share because I believe in the sanctity of each unique and irreplaceable life, created in the image of God.

Why aren't more people talking about pregnancy and infant loss? I think part of it is because it's an uncomfortable thing to talk about babies dying and people think it will never happen to them. I want others to be aware of the importance of counting their baby's kicks

But, the main reason I think PAIL isn't spoken about or acknowledged is because people have minimized the value of the unborn in our society. It's no wonder people don't think it matters when someone loses a baby, whether at a few weeks gestation or full-term. After all, they were just a blob of tissue, right? They weren't a baby yet, so what's there to be upset about? I ask you, then, when exactly is the baby an actual baby? Was Lily not a baby because she never breathed outside my womb, though she made it to 40 weeks? What about the mother who miscarries her very much loved and wanted baby? Is it a baby only when the mother wants it, but otherwise it's just cells? We need to talk about this! And I believe once this is acknowledged more, people will start valuing and understanding the sanctity of all life.

Women around the world, from all walks of life, are affected by pregnancy and infant loss. 1 in 4 women will face a pregnancy/infant loss in her lifetime. Some more than one.

If you have never lost a baby yourself, please help us stop the silence and raise awareness because chances are this has probably already affected someone you love. Please educate yourself so you know how to support somebody if they lose their baby. Consider changing your profile picture to the blue and pink awareness ribbon. Blue and pink for the precious boys and girls who are no longer here. Let's show compassion. Tell someone who you know has lost a baby that you are thinking of them this month.

This month, I honor and remember all the precious ones who are no longer with us, the sons and daughters of Heaven. Their lives are important and they will forever remained loved and missed by those who know them. Let's get the word out about Pregnancy and Infant Loss Awareness. Share your story. Speak out!

Click here to read ideas I've shared for how to get involved during PAIL Awareness Month!

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Thursday, August 16, 2018

The Difference Between Us

Do you want to know what the difference is between the two babies represented by these birth certificates?

The difference is 20 years between birth dates. The difference is Virginia and North Carolina. The difference is merely an ounce between birth weights, with the same length. There is not much difference in their looks either.

They both were full-term baby girls when they were born. They both bear the names of flowers. They are both immensely loved.

Yet, one was born with breath and the other was not. One got to grow up and the other didn't. One celebrated her 29th birthday a few days ago and the other never will.

One is me and the other is my daughter.

That one breath changed the fact that I got one kind of birth certificate and she got another.

One. Single. Breath.

Separates her mattering and counting in other's minds versus not.

It shouldn't. ❤️


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Thursday, July 12, 2018

Lily's 8th Birthday Celebration!

This post is almost 4 months overdue!!

This March 16th was a beautiful one. As I've written before, Lily's birthday means more to me than any other day, even my own birthday. Yes, I get sad and reflective, but it so much more than that. It's like God highlights the day and somehow just makes it feel so special and magical, from start to finish. He hides treasures throughout the day, waiting to be discovered. But honestly, I could sit at home all day and still March 16th would be marked as sacred... and so, so sweet. 8 years out and the sweetness outweighs the bitter in bittersweet, without comparison. I love you, my sweetheart. I know you are safe. I'm forever thankful you are mine and I am yours.

Here is Lily's special spot in Crozet, Virginia decorated for her 8th birthday! The flower arrangement (with roses and lilies of course) was put together by her mommy and grandmother. I found the flag and balloon online. ☺️πŸ’•❤️πŸ’8️⃣





Here are Lily's 8th birthday red-velvet cupcakes with stargazer lilies on top (my favorite type of lily). :) This is one of my favorite traditions for my girl on her birthday, which started because I had a red-velvet cake at my Valentine's baby shower. I got them at a local bakery in Virginia and the owner shares a birthday with Lily Kat! ❤️πŸ’•πŸŽ‚πŸ’•❤️



We had delicious red-velvet ice-cream. We had a mini Shamrock cake too, though I unfortunately can't find that photo now.


My sister-in-law Kala got me these beautiful flowers for Lily's birthday. She arranged them herself. They smelled wonderful! She's such a sweet auntie. ☺️πŸ’•πŸŒ»πŸŒΈπŸŒΏπŸ’


A thoughtful friend of mine from childhood sent me this gorgeous painting for Lily's birthday. Stephanie, thank you so much for remembering my girl with me and for the time you put into this! I've always loved your art. πŸ˜„πŸŽ¨πŸ’•πŸ’œπŸŒΈ 



It was so special to visit Lily's spot on her birthday with her cousin, Harvest, who was almost 2 at the time. Now that H is older, it brings such joy to my heart to watch her show interest in Lily's stone (especially the lamb), to run around in the sunshine and blow bubbles for her cousin. It's a strange juxtaposition of life and death to be experienced in a cemetery. I wish these girls could know each other here. My daughter would now be 8, a big kid compared to lil' H. I know they still have a special bond and fully believe they will one day meet. Harvest wore her butterfly shirt in Lily's honor. πŸ’•







On March 16, 2010 at 4:24 p.m., Lily was born. As is tradition, at 4:24 p.m. on her 8th birthday, we lit the red-velvet cupcake candle that is used only on special dates. We sang Lily girl the birthday song, as well as a favorite of my families' that says, "Every day of the year, may you find Jesus near." Singing those words to her holds and entirely different meaning. We also blew bubbles that my thoughtful friend gave me for Lily's birthday. As you can probably tell by the video, Lily's cousin Harvest loved this part of the celebration. :)


Each year in honor of Lily for her birthday, I like to have some sort of project or do something for others. This year I sponsored a little girl in Jesus' name and Lily's honor through Compassion International. She shares the exact same birthday as Lily!


I was rockin' my St. Patrick's Day green for my mid-March girl over her birthday weekend! 



My friend Tiffany who lives on the opposite Coast also has a daughter who was stillborn on March 16th, in 2007. Sending a package in honor of her girl who shared my girl's birthday is something I treasure each March. Genesis has her own special spot in my heart. It is interesting reading what Tiffany writes because there are so many similarities between us... the same anticipation about our daughter's impending birthdays when the new year rolls around. The same tie we have to March 17th, St. Patrick's Day, and how we associate that date and all things green/Clovers/Shamrocks with our girls. I got them some St. Patrick's Day temporary tattoos so her other kiddos could honor their sister. Anytime I see dragonflies, something that makes Tiffany think of Genesis, it also makes me think of her. It's amazing how we carry the babies of our friends with us always. We both also like to snap photos of the things that are "winks from Heaven." Each year on March 16th, I like to see how Tiffany honors Genesis. We both have traditions. It is sweet thinking of them throughout the day, knowing that Tiffany is probably feeling many of the things I am at the same time I am.


My friend Joanna who used to be my neighbor has a daughter Ashley was also born on March 16th. She turned 15 this year, which means Lily was born on her 7th birthday. My mom and I didn't know them well when Lily was born. However, it's crazy to think about how we were living by each other and had no idea that on the idea I was at the hospital delivering Lily, they were celebrating Ashley's birthday. Two little girls born at the same hospital on the same date 7 years apart. We discovered this shared date a year later, when Lily would have turned 1. It came up in casual conversation with my mom one day. That was around the time we started becoming friends with Joanna. We decided to take Ashley a gift to honor Lily on her birthday, since we can't get anything for our own little girl. They didn't even know about Lily at that point, but right when we took the gift over, Joanna was surprised we remembered her birthday and said, "Oh, you must have someone in your family with that birthday." So my mom told her about our girl. She was so sweet about it and wrote in a thank you card: "Ashley has really enjoyed her birthday gifts. I'm glad she could bring happiness to your special day." (I am referencing old blog posts to recall these details). After that first year giving Ashley a gift, we decided to make it an annual tradition to honor Lily. And by that point, we had become good friends with Jojo. Not only is doing this for Ashley a sweet way to honor Lily, but we really enjoy shopping for girls and imagining what Lily might have liked through the years. We love watching Ashley open her gifts and it means a lot when she likes what was selected for her. 


My friend Bianca in South Africa sent me these adorable photos of her girls wishing Lily a happy birthday! Her oldest daughter is also named Lily and was also born in mid-March, so we have a special connection. :)



I was so thankful my brothers, sister-in-law, and niece were able to join my mom and I in Virginia for Lily's birthday weekend! It means more to me than I could ever express that they celebrate, honor, and remember her with me. Their friend also came up for the weekend, which happened to be his birthday weekend too. It was gorgeous! Look at those Blue Ridge Mountains on Lily's special day.


March 16 Sunset


This little girl right here.... she brings such joy and healing to my heart in the hard moments.


During my pregnancy with Lily, I enjoyed the personal pan cheese pizzas at Pizza Hut, so mom and I had that for lunch.


We ate at Cracker Barrel for dinner when the others arrived from North Carolina. This is a special birthday tradition and where we've eaten all but one of Lily's birthdays (when we were at the beach). They were so sweet to treat me. :)


It snowed in Virginia the week of Lily's birthday and I was able to write something special in the snow. I also wrote a few baby names for friends.


My friend Cambry gave me a red-velvet cupcake for Lily's birthday. It was DELICIOUS!


My friend/roomie Mary gave me a yummy dirty chai tea latte at the local coffee shop her family owns. :)


Thank you for all the comments, texts, messages, etc. and for caring about my sweet girl in 2018! I got some other cards and gifts that I don't have photos of, but I greatly appreciate. A travel mug from Bex, confetti, bubbles, and something for decorating Lily's grave from Emily, a basket of goodies from my Aunt Helen, and a pretty top from Terri. :)


Here are the blog posts I've written over the years, both on Lily's birthdays, as well as the posts about how we've celebrated her birthdays:


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Wednesday, June 6, 2018

It All Started with Those Two Lines in June

Nine years ago this June
Your life within me began
Summer came and with it came you

I was 19 when those two blue lines
Changed my entire life
Telling me you were mine

Afraid of what was to come
Still feeling so young,
At first I wanted to run

Like a delicate bloom,
Slowly opening in Spring
In my heart, for you He made room

As my belly grew
Throughout those months
So, my darling, did my love for you

Nine years
You whispered "hello" and "goodbye"
I am left with missing-you-tears

That positive pregnancy test
Something so small changed it all
With your life, I have truly been blessed

I ache with missing, my dear
But I smile with such joy
I am so thankful God sent you here

That positive sign too soon
Turned to words etched in stone...
It all started with those two lines in June... πŸ’•


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Thursday, March 15, 2018

He Holds All My March 16's

This is something I wrote last year on Lily's Birthday Eve. It remains true today. I updated it to reflect the 8-year-mark.

~~~~~~~~~~~~~~~

As I lay here trying to get my thoughts to shut off enough to get some sleep, my mind goes back to this night 8 years ago.

I clearly remember being in that space between awake and slumber and feeling an overwhelming sense of peace. I knew it was from God. I had been feeling nervous about giving birth and wondering how I could handle the physical pain. Never could I have imagined that in the coming hours, physical pain would be the least of my concerns.

As I drifted off to sleep that night, unsure of what was to come, the Lord already knew how it would all unfold. He knew that in just a couple hours, I'd awaken to contractions. He knew that in just a few hours, I'd learn what He already knew from the foundation of the world... that my little girl would slip away. That she wasn't meant to grow up on Earth.

I look back and am encouraged as I remember the peace and comfort that washed over me that night. And on this same night 8 years later, I am strengthened because that same peace and comfort is meeting me right where I am. The God who saw me that night could see me on this night. He holds my heart and my little girl. He holds all my March 16s in His hands.


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Tuesday, March 13, 2018

Dignity Through Love after Death

There's a certain kind of exquisite beauty in enduring love.

Love that can't see or touch, yet not only remains, but deepens.

Deepens despite the separation of time and even death.

When others judge and see someone "not moving on," I see a mother's lasting, enduring, abiding, persisting, continuing, permanent devotion and eternal LOVE.

She didn't disappear. She isn't erased. She's just there and I'm here. But I love her just the same and anticipate the time I'll see her again.

What kind of mother forgets? What kind of mother has a love that grows cold?

Remember that next time judgement crosses your heart towards a bereaved mother and ask yourself not to speak the message that life isn't valuable anymore after death.

Allow mothers to treasure life even in death, in many ways even more because of death. God speaks so much about dignity through love after death. Absence is felt because value is first recognized. πŸ’•


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Born Still

This beautiful poem captures what I felt in March 8 years ago and in all the days, weeks, months, and years since... oh, my sweet Lily Katherine. To those who've also lost babies to stillbirth, wouldn't you agree? πŸ’•πŸŒΈ


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Monday, March 12, 2018

"Moments" the Day She Slipped Away

I originally shared this on this date in 2012... πŸ’•


Today, March 12th, is the date I had guessed Lily would be born, when really it's the day I now believe she was born into Heaven. My doctor said she had been gone some days when I delivered her. March 12, 2010 was the last day I remember feeling her kick and squirm. The next day was when the sciatica pain started and it felt as if she was floating around in my stomach. It was such a strange feeling and I still remember it so clearly...how did I not know it wasn't normal? How did I not know she was gone?

In my mind, I keep replaying her last moments. When was the moment she left my womb and opened her eyes to Heaven, to beauty? That's all she's ever known. My love and the perfect love of Father God and the tender care of His perfect Son. Did she know she was beholding her Creator when she first opened her eyes?

One moment she was here and the next she was gone. At what exact moment did she slip away and I not even know it? My babe, still in my womb, yet with the Lord. I awaited her arrival, not realizing she was already waiting for me in the Kingdom. Did it happen when I was sleeping? Was I talking and laughing, oblivious to the fact that in that moment my little girl was cradled in the arms of sweet Jesus?

Did she feel any pain? Did she go in her sleep? Did she go in my sleep? I told my brother recently that I wonder if she died during the night when I was lying a certain way. Maybe she was on her cord and cut off her life-supply. What if one movement of my own ended her life and changed the rest of mine? That's a difficult question. But I cling to knowing and trusting that God is sovereign and greater than medical explanations. I believe my little girl was meant to be my daughter of Heaven.

In the moment before she slipped away, did she know she was about to go? Did I somehow know too and now I just can't recall it? Was there a sadness somewhere deep within her, knowing she was never to see my face? Maybe she somehow knew the purposes God sent her for and that they'd already been fulfilled. Maybe she knew she'd never get to live and play and twirl and swirl here on Earth, so she was ready to go...

At times, if I think too much about all this, it makes me heart incredibly heavy and saddened. Maybe it sounds strange though that more than saddened, it makes my heart sing with thankfulness and joy! He chose me to carry her, a set-apart princess, betrothed to the King before her birth. We're both in the center of His perfect will. There is no other place I'd rather be. What peace and joy comes in knowing my daughter gets to spend her life basking in God's glory! She will never know sin and sorrow, she will never be tainted by this world. She is pure and innocent always, my sweet Lily Katherine.

Today, the day that marks 7 years since she lived on Earth, I can almost hear her whisper to my heart... Mommy, I am more alive here than I ever was there! I will see your face one day and you will gaze into my eyes. I am your daughter of Heaven and I am twirling and swirling and doing all that little girls do, here on streets of gold, here where there is such beauty your Earthly mind could not ever imagine or comprehend. I can't wait for you to see Jesus face-to-face too. He tells me all about you! I'm cheering you on, mommy!! I'm so proud of you for being my voice, Luke's voice, and the voice of other mommies and babies. Keep clinging to Him, for the time is coming soon when we'll be together for all Eternity...

(Email subscribers click HERE to listen).


A few years ago on this exact date, I stumbled upon a song that I know Jesus led me to, as a gift of hope on the anniversary of the day Lily Katherine went HOME to be with Him forever, in the place where she waits for me. It reminds me of the words He put on my heart that you just read above.

Here are the lyrics:

I was awakened last night.
To the sound of dancing feet above me.
I thought they were on my roof.
'Til it struck me – they were on golden streets.

Opened my eyes and saw
What I thought was an angel dancing.
She was a perfect child.
She looked at me and smiled – and sang this song.

“Mama can you hear me?
Daddy can you feel me?
I’m made whole.
I’m at home.
I’m dancing on streets of gold.
Don’t stop holding on.”

Her hair was golden
like it was woven from the streets she danced upon.
She was laughing and spinning.
She couldn’t stop singing this song.

“Mama can you hear me?
Daddy can you feel me?
I’m made whole.
I’m at home.
I’m dancing on streets of gold.
Don’t stop holding on.”

This is Amy’s Song
This is Amy’s Song.
From her streets of gold
She is singing you a song.
Singing you a song.
Don’t stop holding on.

Can you see her at His throne
With her hair of gold?
She is holding – holding on
To the threads of His robe.
She is singing you a song
She is singing you a song
She is singing you a song of hope.

“Hope is being born in you
Hope is being woven.
Hope is being born in you
Hope is coming.
Don’t stop holding on.”

(Email subscribers click HERE to listen).

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Wednesday, February 14, 2018

Fast Forwarding and Rewinding

When Lily was born, when I held her precious tiny body in my arms... she was so silent... so still... my tears spilling out on cheeks that would never feel her own tears.


It's almost like in that moment of reveling in newborn goodness, baby girl sweetness and purity, I could picture Lily as an old woman.

I held her, this being so fresh from God, and in my mind's eye, the movie reel of her life played out... only, it didn't go forward, but backwards. Instead of holding my baby girl dreaming of what will be, I held my baby girl and dreamed of what never will. I ached over the life that wouldn't be lived out. I ached over the childhood lost, the babies and grand-babies of her own that she'd never hold. I saw all these events and memories of the full type of life that only someone elderly could understand. I saw them going backwards, fast forwarding and rewinding at the same time. Erasing what never will be in the first place.

But still my heart and my mind saw the movie of her life play out. My mother heart naturally somehow knew at least to some extent what could have been, what I dreamed would have been. The life she would have treasured even long after I was in the ground.

It reminds me of a poem by Tricia Richards on stillbirth in which one line she writes, "We cannot remove the shroud of death that holds you still."

The shroud of death held her body still in that moment. It holds her body still in this moment nearly 8 years since her birth. It holds what might have been still, frozen on could-have-would-have-should-haves. πŸ’—

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